University of Iowa Hospitals and Clinics

Madison's Story

Our youngest daughter, Madison, was born with a partial trisomy 13 chromosome which has led to multiple health needs. Being able to utilize telehealth at our local CHSC regional center enables me to provide a more normal life for my other children and eliminate hours of travel to appointments from our home in Ottumwa. One of Maddie's main medical complications is feeding. She is currently 100% G-tube fed, which is somewhat of an oddity in southeastern Iowa.

The staff at CHSC make me feel heard and supported, encourage me as a mom, and are very empathetic to the many ways our family's lives have changed. We get this support from both the Ottumwa staff and from our Bettendorf-based dietitian through telehealth. 

Being able to have full feeding support for our daughter locally has eliminated so much extra stress and travel time for our family. Now when we have an appointment, I can take my other children to their grandparents' house, take Maddie to her appointment, and meet with multiple providers at the same time. Our family is thankful for the amazing support that has been provided by CHSC locally and via a TV screen.